Joi Ito's Web

Joi Ito's conversation with the living web.

January 2017 Archives

I first met Karole Armitage at a dinner Tod Machover's home. (Tod is a faculty member at the Media Lab.) Karole was a perfect candidate for the Director's Fellows program and she agreed to join us.

Karole describes herself as a former "punk ballerina" and through dance and movement is able to connect so many interesting ideas and worlds. She's already started to actively collaborate with a number of people at the Lab. In this conversation we discuss some of those collaborations as well as some new ideas.

Audio is available on SoundCloud and iTunes.

John Brockman's EDGE asks a tough question every year. For 2017 the question was "What scientific term or concept ought to be more widely know?" My answer was:

Neurodiversity

Humans have diversity in neurological conditions. While some, such as autism are considered disabilities, many argue that they are the result of normal variations in the human genome. The neurodiversity movement is an international civil rights movement that argues that autism shouldn't be "cured" and that it is an authentic form of human diversity that should be protected.

In the early 1900s eugenics and the sterilization of people considered genetically inferior were scientifically sanctioned ideas, with outspoken advocates like Theodore Roosevelt, Margaret Sanger, Winston Churchill and US Supreme Court Justice Oliver Wendell Holmes Jr. The horror of the Holocaust, inspired by the eugenics movement, demonstrated the danger and devastation these programs can exact when put into practice.

Temple Grandin, an outspoken spokesperson for autism and neurodiversity argues that Albert Einstein, Wolfgang Mozart and Nikola Tesla would have been diagnosed on the "autistic spectrum" if they had been alive today. She also believes that autism has long contributed to human development and that "without autism traits we might still be living in caves." Today, non-neurotypical children often suffer through a remedial programs in the traditional educational system only to be discovered to be geniuses later. Many of these kids end up at MIT and other research institutes.

With the discovery of CRISPR the possibility of editing the human genome at scale has suddenly become feasible. The initial applications that are being developed involve the "fixing" of genetic mutations that cause debilitating diseases, but they are also taking us down a path with the potential to eliminate not only autism but much of the diversity that makes human society flourish. Our understanding of the human genome is rudimentary enough that it will be some time before we are able to enact complex changes that involve things like intelligence or personality, but it's a slippery slope. I saw a business plan a few years ago that argued that autism was just "errors" in the genome that could be identified and "corrected" in the manner of "de-noising" a grainy photograph or audio recording.

Clearly some children born with autism are in states that require intervention and have debilitating issues. However, our attempts to "cure" autism, either through remediation or eventually through genetic engineering, could result in the eradication of a neurological diversity that drives scholarship, innovation, arts and many of the essential elements of a healthy society.

We know that diversity is essential for healthy ecosystems. We see how agricultural monocultures have created fragile and unsustainable systems.

My concern is that even if we figure out and understand that neurological diversity is essential for our society, I worry that we will develop the tools for designing away any risky traits that deviate from the norm, and that given a choice, people will tend to opt for a neuro-typical child.

As we march down the path of genetic engineering to eliminate disabilities and disease, it's important to be aware that this path, while more scientifically sophisticated, has been followed before with unintended and possibly irreversible consequences and side-effects.

See the answers from everyone else on Edge.

Andre and Karthik were both took the Principles in Awareness class that Tenzin Priyadarshi and I taught twice over the last few years. They both independently became interested in connecting the idea of non-duality and artificial intelligence. We'd been Slacking and chatting and thinking about the topic so I invited Andre over for lunch the other day and Skyped Karthik in from India and did a Facebook Live about the topic.

The audio is available on iTunes and SoundCloud.

The next step is to write up a short post about the idea. :-)

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I first met Virginia in 2015 when she and I were on a panel with Fareed Zarkaria at the Connecticut Forum. Late last year, she and Panio from Heleo reached out to see if I'd join Virginia in a conversation over Skype. Heleo "curates compelling, candid conversations between writers and thinkers about their work, research, and interests." You can see their great summary of the conversation on their website.

After the conversation, I asked if I could repackage the audio as a Podcast which you can find on iTunes and SoundCloud.

Virginia and I had recently gotten each other's books and a wide ranging but super-fun conversation ensued. It definitely left me excited to talk to Virginia again and expanded the perspective - thinking about the Internet in the context of art and design - that she covers in her book. We talk about the media, the Internet (yes, I still capitalize "Internet"), design, art, culture and many other things.

Also, as I explore various modes of publishing conversations online, I find it fascinating running into others exploring this space too.

If you've finished reading Whiplash, definitely pick up MAGIC AND LOSS: The Internet as Art if you haven't already. It's great.